Final Days on Site

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a day in the life working alongside the CLI research team

I spent my last few days doing data entry (real glamorous, I know), getting all the physical materials in the office in order, and trying to meet with as many people as possible to get some decisions made.

But decisiveness never comes easy. I offered up a needs assessment and an analysis of five potential interventions that address prenatal and perinatal needs in the community. Now the leaders in the clinic and the research team need to discuss and decide: is it TBA supply we want to address? the lack of autonomy we see amongst mothers? the transport issue? There’s pros and cons to each, considering project feasibility, anticipated effectiveness, costs, political implications, etc…

transport issues are a commonly reported barrier to facility births (and thus, births with expert assistance). this ambulance is reserved for emergency transfers from CLI to other hospitals.
transport issues are a commonly reported barrier to facility births (and thus, births with expert assistance). this ambulance is reserved for emergency transfers from CLI to other hospitals.

When everything is so interconnected, it’s hard to imagine addressing one obstacle and not the others. But we have to start somewhere, and with no existing budget for a new intervention, we’ll have to narrow in on a single project, at least for now.

Waiting isn’t fun, but it’s important to me that we make sure everyone is on board with any active response we decide to take on. The clinic team has to make tough decisions all the time about how much activity beyond patient care can really take place before you’re putting people at risk. It’s possible that no new interventions come from the data, and even that would be better than doing a half-intervention because not everyone was committed.

I’m back at home now, back to communicating via email and What’s App, back on the nights and weekends grind, but I’m excited to see what’s next.

Happy to be reunited with Barry, Binja and (not pictured) Blue.
Happy to be reunited with Barry, Binja and (not pictured) Blue.

Sometimes I catch myself feeling a little too attached to the final outcome of the (potential) intervention, but realize I’m getting ahead of myself. We started with virtually no data on the maternal and neonatal outcomes in the catchment area. Even if we can get access to the Ministry of Health records, now that we’re a facility providing delivery services, we’d never have these audits on the deaths that took place in the community. The findings can feel kind of hollow when most of what you report aligns with assumptions of the staff who already work with these patients day in and day out. But having estimated frequencies, having records of actual cases, having interviews with typical residents in the catchment area (our staff aren’t exactly representative of the average CLI patient), it’s all valuable for expressing need in the community, asserting or questioning existing assumptions, and maybe supporting a grant application some time down the road.

Thanks for following along! My next update will share findings from the project evaluation.

Meetings, the Malawian Way

Maybe some day I can host a volunteer meeting in Malawi without overthinking every detail, but this was just not the day.

When we do events for my main gig at Ohio State we have a real start and end time: at Tuesday’s community volunteer meeting people arrived any time between 11:55 and 2:30.

I wrote a detailed “agenda” (okay a script, it was a play-by-play script) that I’m pretty sure no one read, and I’m positive it wasn’t followed, and I didn’t need to understand Chichewa to know it.

At home, when you invite a bunch of people to come to a meeting and they are sitting in silence, just staring… waiting for something happen for minutes on end, something has gone seriously wrong. But here people are used to that. I was the high strung Mzungu trying to move things along for a few (30) minutes. Eventually I realized I needed to let my team do their thing. That we’d get our surveys completed to the best degree that we could, that everyone would get the snacks and transport money they needed, that everything would be fine. Even if people spent their whole afternoon with us, it would be okay.

And really it was. Sixty six volunteers attended! Three more than came to our meeting last year, meaning despite HSA turnover engagement has persisted and we are still able to call on our community reps when we need them. It was so nice to recognize names and faces, to see so many in the shirts I distributed last year, and to hear them offer insights in another open discussion. The surveys seemed to have given them a safe space to provide different feedback than what they said out loud.

Even if the responses are critical, the most important part was that our community reps came and gave honest feedback.

I’m still rummaging through the data and trying to formulate some lessons learned. One clear indicator is the measure of volunteer training: we asked if our volunteers have been given the information they need to fully understand their role in the surveillance. Seven responded “Neutral/Don’t Know” and the remaining 50+ said they Agreed or Strongly Agreed. A good sign for our training program and the HSAs’ work!

So another one of those necessary and exciting and exhausting meeting days has come and gone, and I’m happy to know that this outreach program has been successful enough to catch the attention of hospital leadership. The head clinicians have engaged with the group and asked to work with them for other outreach initiatives outside of this surveillance effort.

The stark difference between what’s inside the walls of the CLI campus and what is outside can be daunting–it’s an oasis inside of a dust bowl. Connections with the community bring that progress outside of the compound and it feels good AF to be a part of it.

Old World Sexism

Last year I wrote about a bylaw requiring women and TBAs to pay a fine of a goat to the chief of their village each time they have a home birth. The other day I found out that when a young girl “falls pregnant*” her family also owes a fine to the chief as a penalty. I couldn’t help but ask “what about the boy or man’s family?” even though I knew the answer was that there is no accountability on the male’s part.

*So often the language alone says so much.

It’s bad enough when you know a culture facilitates victim blaming and double standards, but when the policies enforce them so blatantly, it gets to me. Don’t get me wrong—I’m aware of reproductive rights issues we have around the world including at home, but at least our policymakers have to try working a little more discreetly to write sexist legislation.

I also learned that medical students are taught just two categories for induced abortions: “inevitable” or “criminal.” The physicians had a dynamic conversation* about the appropriateness of putting that kind of language on a medical record. Their job is to treat people, not to get involved in legal disputes and criminal cases. The truth is abortions are still illegal here (pretty comprehensively), so technically calling it criminal is accurate. But the fact that stigmatizing language can even be found on your hospital chart demonstrates how pervasive the oppression of women really is.

*I was proud of the clinic leadership for even having the conversation—it was not easy or comfortable, as the Christian faith is a big part of this hospital. Ultimately, they were clear about wanting to do right by their patients.

Working on a research team connected to a clinic means it’s easy to see how these systemic issues touch individual lives.

The founder of CLI, Jeff, told me about a 12 year-old who was raped and impregnated by a local boy and ran away from her parents (no surprise given the environment I just described). She sought refuge with her uncle but was turned away, so was on her own until she came to deliver at CLI hospital. She is one of many cases to inspire the clinic’s new teen motherhood program. They’re working to offer nutritional and parenting support for the mother including a stipend for someone in her family to take time off of work so she can return to school.

It’s a needed service but it’s hard not to think ‘upstream’ about how we can prevent the pregnancies in the first place. Motivating cultural change is so complicated, resource- and time-intensive, so I’m happy to hear that the clinic staff is interested in using the community volunteers organized through my surveillance project as advocates for other initiatives driven by the clinic. These volunteers seem to really believe there is opportunity to improve their villages, and they are one thousand percent critical to driving sensitization efforts. You can’t be a mzungu running around insulting someone’s culture, but a respected champion who shares your vision (maybe an army of them) actually has a chance to incite change.

So, this is where the ‘less data, more doing’ pressure comes from. But evidence has shown time and time again that empowering girls and women promotes growth in all areas (econ/edu/health), arguably with more efficience than any other type of intervention. I hope CLI can learn from those cases and leverage data from Malawi and around the world to move the needle for girls and women right here.

New and Old, Same and Different

I usually pride myself on my adaptability, especially when traveling, but maybe now that I’m working on this project over so long it seems like it takes a little more energy to go with the flow. Of course reminding myself that it’s been an entire 13 months since my last visit makes things more comfortable. My life back in the states sure doesn’t look the same since last time I made this trip.

To organize what would otherwise be a random smattering of updates, here’s what’s inevitably changed, and what’s stayed the same:

CHANGES

Malawian Kwacha

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The currency here has taken a dive since my trip. I thought that meant good news—that what’s left of the money i left in USD would be worth even more now than it was before! But it turns out the funds were all exchanged at once. Ouch. So even though the money has been well managed I’ll be needing to leave some extra behind to complete the 18 months of surveillance we originally planned for.

Clinician Buy-In
One of my two main supporters in the clinic no longer works at MWC. Another doctor has jump started a new, awesome initiative providing support for the teenage mothers they see in the maternity ward (another change that i’m super excited to share in more detail later!).

I’m going to be testing the waters in the next weeks to see what kind of room there is left to take action in response to the data we see from the surveillance (cases include a couple of teenage mothers but not many).

Office Location
The old research office is the new and improved laboratory for the clinic. We’re jus around the corner in a  space that feels about the same—it might even be a bit bigger.

SAMESES

Attention on Home / TBA Births

One of the research assistants delivered an impressive proposal for an initiative to work with Traditional Birth Attendants in the area and retrain them as advocates for safe deliveries at a facility with skilled assistance. I was considering this as a potential intervention to explore, so I’m glad to see someone else was thinking in the same direction.

Again, though, I am wary of moving forward with a comprehensive reaction to the surveillance before we’ve really completed the data collection, looked at the results as a whole and evaluated our efforts. I guess I can’t be surprised that everyone is moving at twice my pace, since they’re here working all day every day. Sometimes being strategic just takes a bit more time, and it can be difficult to wait if you already see where you can have a very positive impact.

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meeting prep is better when you’re prepared enough to know they don’t have a color printer, so you’ve bought markers to make it work.

Life at the Guest House
I’m back to sleeping in the same room, enjoying the same food cooked by Freddie, playing with Afshan’s kitty and sitting by a fire almost nightly. It’s still cold like last time and I’m unprepared for it like last time.

Navigating Needs
There are so many good things to put time and money into. Good people trying to go to school, interventions designed to fill obvious needs in the community, existing efforts and interest expressed by the CLI or MWC leadership… I’m putting on my collaboration cap and trying to see how I can align my existing work with the initiatives MWC is already committed to, but I hope we aren’t doing too much shoe-horning just to make that work. Every project brings a dozen new needs to the surface and it’s hard when you know you can’t do it all.

Tomorrow I meet with clinic leadership to see just how that alignment might work. Wish me luck!

Zikomo.

Wrapping Up

Turns out I had no problem staying busy for my time on site without the research team.
I got consultation from one of CLI’s resident obstetricians, who offered great feedback including the ever-looming “does the District Health Office know about this?” question. This, along with advice from my advisor, and 2014 conversations where I inquired about the need to involve the govt public health orgs, led to a field trip yesterday. After several stops at various DHO buildings and lots of help from a CLI surgeon/administrator, we had a parking lot meeting with Malawi’s Coordinator for Safe Motherhood. It actually left me feeling much more accomplished than the term ‘parking lot meeting’ implies.
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I also found out that the CLI Maternal and Neonatal Mortality Committee I was proposing to be established already existed. !
And, that the Ministry of Health has, in fact, updated their maternal death audits recently. Which means changes for ours—but good ones, since the additions they made align with a portion of the information we included in ours.
Finally, I put together a ‘sustainability report’ that outlines what project management and resource alignment needs to happen to ensure that this whole thing doesn’t lose steam when I leave. This involved calculating what the project costs and how long my fundraising could sustain it.
Good news: The money I fundraised (plus some that I saved), is enough to support the maternal and neonatal mortality surveillance for 18 more months!
This is a significant amount of time. Long enough to plan for 12 and 18 month evaluations to see if the information collected is valuable enough to absorb the future costs into the regular expenses of the research program and continue with the surveillance. Since I’ll need to do a ‘final project’ to complete my MPH in a year, this could create a perfect opportunity for me to get some experience in public health program evaluation, which I’ve always had an interest in.
I spent my last day in the research office sending many emails of terrifying lengths, like a mom leaving for an extended vacation and needing to make sure you know how to set the alarm right and what to do in case you set it off anyway and also that the key to the shed for watering the garden (the half that needs watering, NOT the other half that gets all the rainwater from the gutters) is behind that lawn chair with the… you get the picture.
I’ve agreed to remain a resource for the team to be sure that the foundation for the system is strong. The CLI staff will take over all routine aspects of the system such as volunteer recruitment, training and kit distribution, case auditing and reporting.IMG_2816
It was a crazy last half of my visit, (especially with a safari weekend squeezed in the middle!) but I’m very proud of what I’m leaving the team with as I head back to the states. Thanks, again, to all of the moral and financial support from friends and family.
Zikomo kwambiri, and see you soon Ohio!

and the work begins

I made it! With almost all of my stuff and almost no plane sleep.

Which meant 11 hours of deep, deep sleep and waking up to the cleaning staff knocking at the door this morning. My roommate and I arrived at the same time and both slept in and missed the daily 7:30 meeting at the clinic. Oops. We’ll have to do the formal intros at tomorrow’s and hopefully everyone will understand that jet lag is real.

Accommodations are very hotel-like; the bathroom is much nicer than my own at home. The staff is amazing, food is great, and the site is gorgeous. I will take a walk around the premises this weekend to better illustrate in photos.

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And, there is a cat. A black cat named midnight who follows people around and commands attention like all great cats should. Malawi is known as ‘the warm heart of Africa’ and the people are living up to the name entirely. I am spoiled here.

In spite of my tardiness, I was pleasantly surprised by how productive my first day was. I got to sit down with the Health Surveillance Assistant who is our main connection to all of the community surveillance volunteers. We reconciled some long lists of participants and their villages that had a bunch of disparities. We have almost 50 volunteers trained, photographed and with IDs made!

I also made a guide for the community volunteers that’s more visual and less text-heavy. We’re going to meet with as many as possible this Tuesday so I’ll be preparing for that in the coming days. Another big project that was supposed to be taking off this month was significantly delayed, so I’m very happy to know that getting my work complete is actually feasible and that the people I need to work with have the availability.

Since I’m meeting with volunteers, I need to learn some Chichewa. Greetings aren’t bad:

Muli Bwanji – how are you?

Ndili bwino, kaya inu? – I am well, and you?

Ndili bwino – I am well

Zikomo – thank you

Ndapita – Goodbye

But things get scary pretty quickly:

Ndithandizeni – Help

Sindikumvetsetsa – I don’t understand

So, fingers crossed I understand everything and never need help.

 

Photos coming soon, I promise. Ndapita!

Thank You! + CLI Photos

Guys. You, ahem, made it rain on my birthday. Knowing I’m surrounded by people who believe in me and what I do is the BEST gift I could ask for and I can’t thank you all enough.

Immediate costs of the project are covered, but the longer we can pay our own way in staff salaries and supplies, the better for CLI. They will pick up the expenses when my contributions run out, but that does take away from other funds they would otherwise use to care for the community and execute other important research projects in the catchment area.

So in case you haven’t made it over to my fundraising page yet, I’m keeping it open through this month.

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My advisor took a good hard look at our materials and started asking the what-ifs and other awesome questions that will make my tools more powerful. Grateful for the close look but I have a lot of the more tedious work that’s not so fun to blog about. Instead of boring you to death about my spreadsheets and protocols, I want to tell you more about the site I’m working at, Child Legacy International.

Just from looking at photos you get the impression that there’s a lot going on in this compound in rural Malawi.

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First, it runs off of wind and solar power. When you run a clinic and research lab, having consistent power supply is not an option, so they’re building a pretty robust system. When I met one of the founders a couple of months ago,  he made a good point about providing creature comforts as incentives to retain the Malawian staff they train and educate to work at the center. I get it, too–those little things count and you want to have the best people.

Though my project is really focused on work for the McGuire Wellness Center, CLI is way more than just a clinic.

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Their compound has farms,

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including tilapia ponds that feed staff and patients, then extra go to market for profit to the center

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clean water access projects,

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below is a photo of the cofounder I haven’t met yet–from what i can see in the photos she walks the walk when it comes to collaborative efforts and i love it.

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There’s also a school for young kids, and opportunities for vocational training too.

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plus a lab for bio testing, a pharmacy, a research arm, so much!

CLI map

It’s impressive to peruse their photos and see how much they have going on, and to see their plans in the future.

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The more I learn about this organization the happier I am to get this opportunity to work with them. I was also glad to see that they’ve earned the highest possible rating by Charity Navigator. It’s another reason why I want to support my surveillance system for as long as possible. The money that’s being put to work by this organization is used where it’s needed and it’s used efficiently.

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Thanks for all of the support you’ve all shown me already, and for any new supporters reading this now!