Team Led Publications

The following publications were lead by Dr. Hand and/or members of the Hand research team. We strive to make all team led publications publicly available through open access options, institutional repositories, or through this website as soon as possible while adhering to journal policies. Full text versions of team led publications can be accessed by clicking the hyperlinks in the title of the publication.

  1. Gilmore, D, Radford, D, Coyne, A, Hanks, C, Coury, D, Hess, A, Garvin JH, Hand, BN (2023, November). A mixed-methods study of autistic adults’ healthcare independence over time. Health care transitions, 1.
  2. Smith, J., Hand, BN., Johnson, E., Keeton, C., Wang, L. (2023, May). Freeman Center for intellectual or developmental disabilities: Patient-centered interdisciplinary care. Health care transitions, 1, 100003.
  3. Gilmore, D., Harris., L., Hanks, C., Coury, D., Moffatt-Bruce, S., Garvin, J., Hand, B.N. (2023, May). “Giving the patients less work”: A thematic analysis of telehealth use and recommendations to improve usability for autistic adults. Autism. 27(4), 1132-1141
  4. Longo, A., Hand., B.N. (2023, March) The impact of social and news media coverage on the dissemination of autism research. Journal of Autism and Developmental Disorders. 53 (3), 1285-1289.
  5. Hand, B.N., Hyer, J.M., Shenck, A., Coyne, A., Gilmore, D., Wang, L., Ejaz, A. (2023, April). Comparing kidney transplant rates and outcomes among adults with and without intellectual and developmental disabilities. JAMA Surgery. 158(4), 386-392.
  6. Krantz, M., Dalmacy, D., Bishop, L., Hyer, M., Hand, B.N. (2023, February). Mortality rate and age of death among Medicare-enrolled, autistic older adults. Research in Autism Spectrum Disorders. 100, 102077.
  7. Gilmore, D., Longo, A., Krantz, M., Radford, D., Hand, B.N. (2022, October). Five ways providers can improve mental healthcare for autistic adults: A review of mental healthcare use, barriers to care, and evidence-based recommendations. Current Psychiatry Reports. 24(10), 565-571.
  8. Gilmore, D., Longo, A., Hand, B.N. (2022, September). The association between obesity and key health or psychosocial outcomes among autistic adults: A systematic review. Journal of Autism and Developmental Disorders. 52(9), 4035–4043.
  9. Alain, G., Gilmore, D., Krantz, M., Hanks, C., Coury, D., Moffatt-Bruce, S., Garvin, J., Hand, B.N. (2022, August). Expenditures and healthcare utilization of patients receiving care at a specialized primary care clinic designed with and for autistic adults. Journal of General Internal Medicine. 37, 2413–2419.
  10. Harris, L., Gilmore, D., Hanks, C., Coury, D., Moffatt-Bruce, S., Garvin, J., Hand, B.N. (2022, August). “It was surprisingly equivalent to the appointment I had in person”: Advantages and disadvantages of synchronous telehealth for delivering primary care for autistic adults.  Autism. 26(6), 1573-1580. 
  11. Longo, A., Gilmore, D., Garvin, G., Hyer, J.M., Coury, D., Hanks, C., Moffatt-Bruce, S., Hess, A., Hand, B.N. (2022, July). Characteristics associated with healthcare independence among autistic adults.  Research in Autism Spectrum Disorders. 95, 101972.
  12. Gilmore, D., Weaver, L., Krantz, M., Hand, B.N. (2022, February). Healthcare service use patterns among autistic adults: A systematic review with narrative synthesis. Autism.  26(2), 317-331.
  13. Hand, B.N., Gilmore, D., Harris, L., Hanks, C., Coury, D., Moffatt-Bruce, S., Garvin, J.H. (2021, December). “They looked at me as a person, not just a diagnosis”: A qualitative study of patient and caregiver satisfaction with a specialized primary care clinic for autistic adults. Autism in Adulthood. 3(4), 347-355.
  14. Harris, L., Gilmore, D., Longo, A., Hand, B.N. (2021, October). Short Report: Patterns of US federal autism research funding during 2017-2020. Autism. 25(7), 2135-2139.
  15. Hand, B.N., Miller, J., Guthrie, W., Friedlaender, E. (2021, August). Healthcare utilization among children with early autism diagnoses, children with other developmental disorders, and a comparison group. Journal of Comparative Effectiveness Research. 10(11), 917-926.
  16. Hand BN, Gilmore D, Coury DL, Darragh AR, Moffatt-Bruce S, Hanks C, Garvin JH. (2021, June). Effects of a Specialized Primary Care Facility on Preventive Service Use Among Autistic Adults: a Retrospective Claims Study. J Gen Intern Med. 36(6), 1682-1688.
  17. Hand, B.N., Coury, D.L., White, S., Darragh, A.R., Moffatt-Bruce, S., Harris, L., Longo, A., Garvin, J.H. (2021, January). Specialized primary care medical home: A positive impact on continuity of care among autistic adults. Autism, 25(1), 258-265.
  18. Gilmore, D., Harris, L., Longo, A., Hand, B.N. (2021, January). Health status of Medicare-enrolled autistic older adults with and without intellectual disability. Autism, 25 (1), 266-274.
  19. Hand, B.N., Benevides, T.W., Carretta, H.J. (2020, October). Suicidal ideation and suicide attempts in Medicare-enrolled autistic adults. Journal of Autism and Developmental Disorders, 50, 3489–3495.
  20. Hand, B. N., Coury, D. L., Darragh, A. R., White, S., Moffatt-Bruce, S., Harris, L., Longo, A., Gilmore, D., & Garvin, J. H. (2021, December). Patient and caregiver experiences at a specialized primary care center for autistic adults. Journal of Comparative Effectiveness Research. 9(16): 1131–1140.
  21. Hand, B.N., Angell, A.M., Harris, L., Carpenter, L.A. (2020, April). Prevalence of physical and mental health conditions in Medicare-enrolled, autistic older adults. Autism, 24(3), 755-764.
  22. Hand, B.N., Boan, A.D., Bradley, C., & Carpenter, L.A. (2019, July). Emergency department utilization and charges in adolescents with autism spectrum disorder, intellectual disability, and a population comparison group. Autism Research, 12(7), 1129-1138.
  23. Schmidt, L.K.,* Hand, B.N.,* Simpson, K.N., & Darragh, A.R. (2019, June). Sexually transmitted infections in privately insured adults with intellectual and developmental disabilities. Journal of Comparative Effectiveness Research, 8(8), 599-606. *These authors contributed equally to this work as co-first authors.
  24. Hand, B.N., Boan, A.D., Bradley, C., & Carpenter, L.A. (2019, January). Ambulatory care sensitive admissions in individuals with autism spectrum disorder, intellectual disability, and population controls. Autism Research, 12(2), 295-302.
  25. Hand, B.N., Darragh, A.R., & Persch, A.C. (2018, August). Thoroughness and psychometrics of fidelity measures in occupational and physical therapy: A systematic review. American Journal of Occupational Therapy. 72(5), 7205205050p1-7205205050p10.
  26. Hand, B.N., Velozo, C.A., & Krause, J.K. (2018, July). Measuring the interference of pain on daily life in persons with spinal cord injury: A Rasch-validated subset of items from the Brief Pain Inventory interference scale. Australian Occupational Therapy Journal, 65(5), 405-411.
  27. Hand B.N., Krause J.S., & Simpson K.N., (2018, May). Dose and duration of opioid use in propensity score matched, privately insured opioid users with and without spinal cord injury, Archives of Physical Medicine and Rehabilitation, 99(5), 855-861.
  28. Hand, B.N., Krause, J.S., & Simpson, K.N. (2018, January). Polypharmacy and adverse drug events among propensity score matched privately insured persons with and without spinal cord injury. Spinal Cord, 56(6), 591.
  29. Hand, B.N., Velozo, C.A., & Krause, J.S. (2017, August). Rasch measurement properties of the Pain Medication Questionnaire for persons with spinal cord injury. Spinal Cord, 55(12), 1117-1122. 
  30. Hand, B.N., Dennis, S., & Lane, A.E. (2017, April). Latent constructs underlying sensory subtypes in children with autism: A preliminary study. Autism Research, 10(8), 1364-1371.

For a complete list of Dr. Hand’s publications please see her Google Scholar profile.