Welcome

Established in 2019, the Family Caregiver Community Research (FamCare) Laboratory is based in the College of Nursing at The Ohio State University. Dr. Karen Moss is the principal investigator for the FamCare Lab. The purpose of the FamCare Lab is to partner with people living with dementia and their family caregivers to improve quality-of-life outcomes. We have a specific focus on meeting the needs of Black/African American communities. Based on research conducted by our group, we have learned lots of important information on how to promote healthcare decision making by improving advance care planning and pain outcomes for Black/African American older adults living with dementia. Using a community-based participatory design process, we began this work by first seeking to determine meaning and understanding of end-of-life and quality-of-life-related terminology. Next, we solicited multiple community partner perspectives on the advance care planning needs of lower socioeconomic status Black/African American older adults living with dementia i.e. current and former caregivers, healthcare providers, and community leaders perspectives. This included ideas on the design of a caregiver support intervention. Together we co-created the Peer Support Program for Black/African American Dementia Family Caregivers (Pair 2 Care), a non-judgmental, flexible, culturally sensitive peer support program.